Our March of Dimes Walk

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Peyton, my daughters’ sister, was born with Turner’s Syndrome.  It affects one in 2,000 female births. I wrote about her March of Dimes team last week on Her View From Home. My husband, Bob and I joined the rest of our blended family for the first time to walk with them last Saturday.

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Peyton has the type of Turners that is the mosaicism where she is half XX and the other half are incomplete. Her official diagnosis is: Turner’s Syndrome with Y Chromosome Mosaicism. Molly has participated in the March of Dimes in the past, but this was our first year to join them.

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Bob, Cami, Ali, and I walked along with several others in Team Peyton. This spunky little girl is only two-years-old, and has already endured more in her short little life than most have imagined. Peyton has already experienced multiple surgeries, one episode when she actually stopped breathing for several minutes, and she rarely goes more than a few days without at least one appointment or test. She will have a lifetime of hormone shots and treatments, physical and speech therapy, scans, and observation from physicians. She is so full of life and spirit!

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It’s impossible not to love that little face!

Some Turner’s Sydrome symptoms:

  • Delayed puberty
  • Heart defects
  • Kidney, thyroid and liver concerns
  • Recurring ear infections, along with hearing loss
  • 40% of girls with Turner syndrome have hypertension
  • Learning difficulties (i.e. math) with normal intelligence
  • Risk for Cardiovascular abnormalities. Typically Bicuspid aortic valve is the most common or coarctation of the aorta. (Peyton must have an echocardiogram to check her heart every 3 years, for the rest of her life.)
  • Social difficulties
  • Sexual development that stalls (Turner’s Syndrome kids often have to receive hormone injections)
  • Inability to conceive a child without fertility treatment
  • Failure to begin sexual changes expected during puberty
  • Higher probability of ovarian cancer
  • Autoimmune disorders that could happen resulting from the Turner’s: Hashimoto thyroiditis, celiac disease, inflammatory bowel disease, and juvenile rheumatoid arthritis.
  • Urinary Tract Abnormalities: (which Peyton has) structural malformation, most commonly known as horseshoe kidneys. It results in increased risk of hypertension, urinary tract infections, or hydronephrosis.
  • Higher risk for scoliosis, kyphosis, and lordosis.

MOD5Many came out for the beautiful day to walk for premature and other babies who need support. It was an honor to have been included. The smiles were contagious.

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I hope to be able to walk in honor of Peyton again.

 

Trish Eklund is taking a nontraditional approach to parenting children after divorce and remarriage. Raising her two daughters of eleven and fifteen with her husband, ex-husband, and his wife, they consult one another on all parenting decisions. Trish has been featured on www.playground-magazine.com, and www.bigblendedfamily.com. She is a regular writer on www.herviewfromhome.com, writer and co-editor for Her View From Omaha. Follow her on Twitter: @trishiewriter, Google +, and Pinterest.

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